Supporting Youth to Adult Health Care Transition

Learning Community

The Youth Health Transition Learning Community provides networking opportunities for those who wish to learn more about transition and move transition forward in their own organizations. This statewide group comes together virtually to share ideas and best practices around youth health transition. This webinar is for medical providers, parents and caregivers, service providers, school staff, and anyone interested in supporting youth as they transition from adolescent to adult health care.

The Youth Health Transition Initiative, based at the Waisman Center in Madison, facilitates Learning Community activities.

The next Learning  Community will be Thursday, September 9, noon-1 pm.    “Integrating Healthcare into Youth Transition Processes: What do we know and how can we help?”

Learning Objectives:
Participants will be able to:
1. Describe the top 10 assets that contribute to integrating the transition process in WI
2. Name 2 strategies or activities where people integrated healthcare into the transition process
3. Identify resources and/or materials that can be used or adapted to include healthcare in the transition process.

Thursday, Sept. 9
12:00pm-1:00pm

To register, go to
https://uwmadison.co1.qualtrics.com/jfe/form/SV_82ZiuP5eMXdlLvg

The Wisconsin Youth Health Transition Initiative will host a presentation on outcomes and lessons from the WI Integrated Transition Planning Project (WITPP) about integrating health into the transition process for youth and young adults with disabilities.

Future Learning Community information: Registrants are able to connect to the Learning Community through Zoom, using your computer or phone. .Registration and details for 2021 events will be available on the website, and notice will be sent out to the list-serv

Sign up for list-serv here.

Receive notifications about upcoming Learning Community opportunities;
join our list-serv!

Unable to attend the live event? You can view past Learning Community webinars using the links below:

This is an accordion element with a series of buttons that open and close related content panels.

2021 Transition Learning Community

2021 Learning Community Dates

Join the quarterly webinar from 12pm to 1pm (CST). Topics and speakers will be listed here.

Details and call information are provided via our list-serv, so make sure to subscribe by clicking here!

(Please note the webinar will take place on Thursdays from 12 pm to 1 pm CST):

May 13, 2021  Learning Community

Lessons Learned from LEND* Transition Training: Family, Student, and Clinician Perspectives

*WI Leadership Education in Neurodevelopmental and Related Disabilities MCH Training Grant

Learning Objectives of the call:

  • Describe the LEND program Transition Consultation format
  • Identify youth and family reasons for wanting help with health care transition planning
  • Use one or more strategies described to help families with health care transition planning

You can watch and/or listen to the recording at May 13, 2021 Learning Community

The presentation power point can be viewed at LC May 13.presentation.

The Youth Health Transition Initiative hosted a presentation on strategies and lessons learned during the LEND Transition Consultation Training. Participants learned about the LEND Consultation model and members of a team: a youth, parent, clinician, and LEND trainee  shared their experiences.

March 11 Adapting Health Transition Services for Youth with Special Health Care Needs during the COVID-19 Pandemic

Learning Objectives of the call:

  1. Describe a model Transition Program at the Emory University Cystic Fibrosis Care Center.
  2. Discuss adaptations in health care transition processes during the move to telehealth during the COVID-19 pandemic.
  3. Apply lessons learned to planning how health care transition services will be implemented in the future.

View the presentation at the following link: https://youtu.be/UdeJiGxcbEk

The presentation powerpoint can be found at this link: WIHealthTransitionLC_03-11-21

The Wisconsin Youth Health Transition Initiative hosted a presentation on strategies and lessons learned for engaging youth with complex health conditions, who are transitioning to the adult health care system, and their families during COVID-19 and beyond.  The first presenter will be Brandi Middour-Oxler, DNP from the Children’s Healthcare of Atlanta and Emory University Cystic Fibrosis Care Center. To share a WI perspective, Megan Teed, DNP, FNP-BC, APNP, from the Complex Care Clinic at Children’s WI and a QI grantee, will share her experience engaging youth and families during the pandemic.

Brandi Middour-Oxler is a doctorally prepared nurse practitioner and the cystic fibrosis Transition Program Coordinator at the Children’s Healthcare of Atlanta and Emory University Cystic Fibrosis Care Center. Her interests include transition-related research, supporting young adults and their parents as they prepare for adult-centered care, and relationship-centered communication.

Megan Teed is a doctorally prepared nurse practitioner in the Complex Care Program at Children’s Wisconsin.  Interests include facilitating communication between health care providers, patients, and families to be able to effectively create safe transition plans for young adults with medical complexity as they transition from pediatric to adult health care.

2020

2020 Learning Community Dates

Join the quarterly webinar from 12pm to 1pm (CST). Topics and speakers will be listed here.

Details and call information are provided via our list-serv, so make sure to subscribe by clicking here!

(Please note the webinar will take place on Thursdays from 12 pm to 1 pm CST):

May 21 “Supported Decision-Making: What Providers Need to Know”

Supported Decision-Making is gaining in popularity as a legal alternative to guardianship and as a means of using natural supports under the auspices of guardianship.

Kristen Crabtree recently graduated with a doctorate in nursing practice with a focus in pediatrics from the UW-Madison. She is also a WI LEND graduate.  Kristen will provide information focused on how health professionals can use the process of Supported Decision-Making in their practice for youth with special health care needs to encourage independence in decision-making. A Supported Decision-Making agreement can be used as an alternative to or as a tool under guardianship.  Attorney George Zaske will join Kristen as her guest to provide a parent perspective. View presentation at the following link: https://youtu.be/wHjoGYs5zoU

You can also view the power point:

Youth Health Transition Learning Call – SDM

Supported Decision-Making Resource list and links:

SDM Learning Call Resource List[4395]

If you would like background information on Supported Decision-Making, we encourage you to view last year’s Learning Community on Supported Decision-Making at https://youtu.be/q9RNUvKVEbI

September 17

Health Care Transition: Transition Stories about Challenges Faced by Generation Z

A parent/youth team from three families will tell their stories of transition and how they are coping with the move from pediatric to adult health care. Hear 3 transition stories from WI and how each youth’s and their family’s transition is unique. They will discuss how health care providers can support them through the process. We will also debut 2 of our transition videos. There will be time to ask questions. The presentation can be viewed at https://www.youtube.com/watch?v=NII7ympYElc

View the slide presentation at LC Sept 17 presentation

November 19 Learning Community presentation: “Successful Completion of Transition to Adult Health Care – Experiences from Complex Care”

Two clinics that received small grant funding this year to advance Family-Centered Care Coordination for Children and Youth with Special Health Care Needs through a Shared Plan of Care Quality Improvement Project. Medical professionals and a parent presented from their experience building awareness, educating about, and implementing quality improvement efforts using evidence-based tools and resources. The recording can be accessed at https://youtu.be/EWWeRJVIeyM. Presentation available at Children’s WI Lessons Learned, Parent Perspective Lessons Learned, and American Family Children’s Hospital Lessons Learned.

2019

2019 Learning Community Dates

Topics and speakers are listed here.

Details and call information are provided via our list-serv, so make sure to subscribe by clicking here!

Thursday, November 14

“Lessons from the field: Transition Support Tools and Practices”
We will feature a sneak preview of UW Health’s “Youth to Adult Transitions Toolkit” by Leanne Marso, RN, AFCH Ambulatory Operations Director and Co-Chair of the Youth to Adult Transitions Steering Committee.

We will also have a discussion of successful transition practices shared by QI grantees focusing on transition who are participating in the 2019 Medical Home Shared Plan of Care Quality Improvement projects.  A UW Health team will be sharing how they are piloting their Transition Readiness Assessment with patients/families.

NOTE: On this call we’ll also be discussing the expectations when applying for the additional dollars associated with a “Transition focus area” in the 2020 RFA for Advancing Family-Centered Care Coordination for Children and Youth with Special Health Care Needs using a Shared Plan of Care (SPoC) (applications due Dec 2).

View presentation at the following link: https://youtu.be/rm9xAaBixCY

Thursday, September 26

Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions.
Melissa Novotny, DNP-Nurse Practitioner, Pediatric Complex Care Program and Pediatric Cerebral Palsy Clinic, American Family Children’s Hospital, will join us to discuss her article Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions, which is part of the supplement in Pediatrics “Building Systems that Work for Children with Complex Health Care Needs,” February 21, 2018.
View presentation at the following link:  https://youtu.be/hmAHgNFbXWo

Presentation slides

Thursday, May 16
Supported Decision Making
WBPDD: Tami Jackson, Public Policy Analyst and Legislative Liaison
View presentation at the following link: https://youtu.be/q9RNUvKVEbI

Presentation materials:
Presentation slides
Resource handout

Thursday, February 28
Assessment of Health Care Transition Readiness for Health Care Practices
Youth Health Transition: Anne Harris
View presentation at the following link: https://youtu.be/rVwz_Mf8u9I

2018

November 27, 2018

Part I: Journal Review: Discussion and Highlights of Updated 2018 Clinical Report on Transition.
Youth Health Transition Team
View presentation at the following link: https://youtu.be/_cZ-wOO1e44

Part II – Wisconsin Board for People with Developmental Disabilities (WBPDD) Tools and Resources
WPBDD: Jeremy Gundlach, Communications Specialist
View presentation at the following link: https://youtu.be/gT3k7zH32H4

September 25, 2018

Transition Tools & Resources: Meeting the Needs of Different Audiences
Maia Stitt, MS
Youth Health Transition Initiative (YHTI) Coordinator

View presentation at the following link: https://youtu.be/jXc74NVtDik

May 22, 2018
Successfully Partnering with Youth: Strategies for Including Young Adult Perspectives to Improve Adolescent Health Outcomes – Wisconsin Transition Learning Community & PATCH
Erica R. Koepsel, MA PATCH Program Manager

Eliette Soler, PATCH Teen Educator

View presentation at the following link:  https://www.youtube.com/watch?v=p6wuJdHpI-E

March 27, 2018
Health Care Transition Payment Strategies – Wisconsin Transition Learning Community
Peggy McManus, MHS, Got Transition, The National Alliance to Advance Adolescent Health

View presentation at the following link: https://youtu.be/c99uj8hOJdU

Presentation materials:

Coding and Reimbursement Tip Sheet

Template Letter on Pediatric to Adult Transition Codes version 1

2017

August 9, 2017
Efforts and Reflections from the 2017 Youth Health Transition Quality Improvement Grantees
2017 Quality Improvement Grants Teams

View presentation here: https://youtu.be/TtLIZO1T0cE

June 14, 2017
Become the CEO of Your Life: Navigating Life and Health Care Transitions
Anna Goulker, MS

View presentation here: https://youtu.be/vihd-r8Kmkg

April 12, 2017
Identifying and Partnering with Adult Health Care Providers for Successful Transitions
Peggy McManus, MHS

View presentation here: https://youtu.be/p21DgzQ8X4I

February 8, 2017
Engaging Patients and Key Stakeholders In Quality Improvement
Sarah Davis, JD, MPA, Associate Director, Center for Patient Partnerships

View presentation here: https://youtu.be/x7RMtpUVtWY

2016

September 27, 2016
Quality Improvement Grantees
Efforts and Reflections from the 2016 Youth Health Transition Quality Improvement Grantees

Presentation unavailable.

June 17, 2016
Emilia Arana, MD, Department Director, Pediatrics, Sixteenth Street Community Health Center:  Implementing Health Care Transition – Experiences in a General Pediatric Practice

Presentation unavailable.

April 4, 2016
Megan Farley, PhD, Waisman Center UCEDD: Supporting Families to Aid Teen Transitions. Transitioning Together.

View presentation here: https://youtu.be/AB2S21-HSrQ

2015

June 4, 2015
Liz Hecht, Waisman Center UCEDD: Assisted Decision Making.  Ellie Hartman, WI PROMISE

March 2015
The 2014 Transition Grantees,  presenting on family engagement and involvement in transition QI

2014

December 2014
Kerry Jedele, MD, Kevin Josephson MS, CGC, and Lara Head, PhD.  Life-long care for persons with Down Syndrome

June 2014
Craig Becker, MSSW, Darci Pfeil, PNP and UW Health Pediatric and Adult Teams on transition and cystic fibrosis

February 2014
Drs. Mala Mathur, Ann Behrmann, and Leah Ederer of GHC-SCW on their transition initiatives.  

2013

November 2013
Dr. Bob Rohloff and a team from Southwest Pediatrics/Children’s Hospital of Wisconsin on their experiences creating a transition committee