Information & Tools
Changing the Way We Care for Adults with Intellectual and Developmental Disabilities
Two videos that tell doctors, nurses, medical office staff, and other health care workers about how they can make health care better for their patients with intellectual and developmental disabilities. Module 1 :Communication and Respect; …
Stay A Step Ahead Brochure
A brochure summarizing the steps in healthcare transition. Available in English and Spanish. To request print copies, contact healthtransitionwi@waisman.wisc.edu.
Health care transition for children with medical complexity: Challenges and lessons learned
An article from the Journal of Pediatric Nursing published in 2021. Describes the Complex Care Program’s evaluation of its practices prior to 2019 and efforts to standardize transition guidance, planning, and documentation within the Program …
Promoting Self-advocacy for Young Adults with Chronic and Rare Conditions
An editorial published in the June 2022 issue of the Journal of Pediatric Nursing. Describes Generation Patient, a nonprofit organization created and led entirely by young adult patients. The organization focuses on empowering adolescents and …
Trainings
Introduction to Youth Health Transition video
This recording provides an overview of the healthcare transition process. It should be viewed before participating in the Build Your Bridge or Dreaming Differently trainings.
Closing the Gap: A Basic Overview of Youth to Adult Healthcare Transition
Introduces healthcare professionals to the concept of healthcare transition with a focus on children and youth with special healthcare needs. Attendees will learn about the status of healthcare transition work in Wisconsin; including barriers, strategies, …
Closing the Gap: A Healthcare Provider’s Guide to Working with People with Intellectual and Developmental Disabilities
Learn communication, motor, sensory, and behavioral strategies to improve the care of individuals with intellectual and developmental disabilities. Identify environmental changes you can make in your practice setting to reduce challenging behaviors in people with …
Closing the Gap: Implementing Got Transition’s® Six Core Elements
Helps healthcare providers assess transition within their practices and plan for improvement using Got Transition’s® Six Core Elements. This training takes 20-40 minutes to complete and is tailored to meet the specific needs of the …
Closing the Gap: Guardianship and Supported Decision-Making: What Health Professionals Need to Know
This provider training describes decision-making tools available to promote autonomy for youth and young adults with special healthcare needs, with a primary focus on Supported Decision-Making. Learn about resources to assist your transition-aged patients make …
24th Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-Based Care
October 26-27, 2023
Registration is now open for this annual conference on healthcare transition. The conference will be held at the Jan and Dan Duncan Neurological Research Institute in the Texas Medical Center Houston, Texas.
We will host live webcasts in Madison and the Milwaukee area. Contact us if you are interested in joining the conference in this way.
Eight Important Tools for a successful transition to adult healthcare
The Youth Health Transition Initiative has identified 8 tools for families and youth. Careful planning using these tools will help transition go more smoothly and cause less stress for families.
Supported Decision-Making and Alternatives to Guardianship
Learn more about the options available for supporting healthcare decisions for adults with disabilities or special healthcare needs.
Healthcare Transition Stories
Hear the experiences of young adults and their families as they transitioned to adult healthcare.
Got Transition Website
Got Transition® is the federally funded national resource center on health care transition (HCT). Its aim is to improve the transition from pediatric to adult health care through the use of evidence-driven strategies for clinicians and other health care professionals; public health programs; payers and plans; youth and young adults; and parents and caregivers.
Regional Centers for Children and Youth with Special Health Care Needs
Wisconsin has five Regional Centers devoted to supporting families with children and youth with special health care needs (CYSHCN) and the providers who serve them. Each center has specialists. They offer free and private services and can help you: connect to community resources; find services; and get answers.
Resources from the Wisconsin Integrated Transition Planning Project
Resources developed and gathered by our sister project, the Wisconsin Integrated Transition Planning Project.